A REVIEW OF BURDEN OF CAREGIVERS OF PATIENTS WITH ALZHEIMER'S DISEASE
Keywords:
Dementia, Alzheimer disease, caregivers, factors, interventions, care, burdenAbstract
Many are still unaware of the fact that Alzheimer’s disease (AD) also affects the caregivers quite significantly. Caregivers refer to people who are accountable of taking care of AD patients which provide helps with his or her daily living activities and may become a full-time commitment for the caregiver. This gives rise to a concept called caregiver burden. As these caregivers spend most of their time taking care of AD patients, most of them suffer psychologically as well as physically.
Unfortunately, the risk of mental and physical impairment among the caregivers of Alzheimer’s patient may cause poor quality of life to both the patients and their caregivers. In addition, due to their role and responsibilities as a caretaker, they often do not have the opportunity to seek help and advices. This review article was conducted by sieving through numerous literature and studies regarding the challenges and how to help the burden of the caregivers of Alzheimer’s patients . This paper aims to give and overview, suggestions as well as to increase the awareness of the caregiver’s burden.
References
Indra MR, Marhaendraputro EA, Hidayat RR. Beta amyloid polyclonal antibody immunogenicity as early development study of early diagnosis for alzheimer’s disease. Malang Neurology Journal; 2017.3:1–4. DOI: http://dx.doi.org/10.21776/ub.mnj.2017.003.01.1
Mat LNI, Sulaiman WAW, Kee HF, Baharin MAS, Ghenesan S, Ishak SN, et al. Clinical manifestations of delirium in elderly. Malang Neurology Journal; 2018.4(2):78–85. DOI: http://dx.doi.org/10.21776/ub.mnj.2018.004.02.6
Pearlin LI, Mullan JT, Semple SJ, Skaff MM. Caregiving and the stress process: an overview of concepts and their measures. Gerontologist; 1990. 30(5):583–94. DOI: https://doi.org/10.1093/geront/30.5.583
Brodaty H. Working together: combining pharmacological and psychosocial interventions for people with dementia and caregivers. Alzheimer’s Dement; 2010.6(4):S90. Available from: http://linkinghub.elsevier.com/retrieve/pii/S1552526010003948
Vellone E, Sansoni J, Cohen MZ. The experience of italians caring for family members with alzheimer’s disease. J Nurs Scholarsh ; 2002 . 34(4):323–9. DOI: http://doi.wiley.com/10.1111/j.15475069.2002.00323.x
Ferrara M, Langiano E, Di Brango T, De Vito E, Di Cioccio L, Bauco C. Prevalence of stress, anxiety and depression in with alzheimer caregivers. Health Qual Life Outcomes; 2008. 6(1):93. DOI: 10.1186/14777525-6-93
Argüelles S, Loewenstein DA, Eisdorfer C, Argüelles T. Caregivers’ judgments of the functional abilities of the alzheimer’s disease patient: impact of caregivers’ depression and perceived burden. J Geriatr Psychiatry Neurol; 2001. 14(2):91–8. DOI: https://doi.org/10.1177/089198870101400209
Grant I, Adler KA, Patterson TL, Dimsdale JE, Ziegler MG, Irwin MR. Health consequences of alzheimer’s caregiving transit ions: effects of placement and bereavement. Psychosom Med; 2002. 4(3):477–86. PubMed: http://www.ncbi.nlm.nih.gov/pubmed/12021421
Wright LK. Ad spousal caregivers. longitudinal changes in health, depression, and coping. J Gerontol Nurs; 1994. 0(10):33–48. PubMed: http://www.ncbi.nlm.nih.gov/pubmed/7963293
Lutgendorf SK, Laudenslager ML. Care of the caregiver: stress and dysregulation of inflammatory control in cancer caregivers. J Clin Oncol; 2009. 27(18):2894–5. DOI: 10.1200/JCO.2009.22.1523
Cheung C-K, Ngan RM. Improving older adults’ functional ability through service use in a home care program in hong kong. Res Soc Work Pract; 2005. 15(3):154–64. DOI: https://doi.org/10.1177/1049731504270385
Strain LA, Blandford AA. Community-based services for the taking but few takers: reasons for nonuse. J Appl Gerontol; 2002. 21(2):220–35. DOI: https://doi.org/10.1177/07364802021002006
McCurry SM, Gibbons LE, Logsdon RG, Vitiello MV, Teri L. Insomnia in caregivers of persons with dementia: who is at risk and what can be done about it? Sleep Med Clin; 2009. 4(4):519–26. PubMed: http://www.ncbi.nlm.nih.gov/pubmed/20046806
Graff MJL. Rcts involving occupational therapy with community-dwelling families of individuals with dementia. Alzheimer’s Dement; 2010. 6(4):S90. DOI: https://doi.org/10.1016/j.jalz.2010.05.275
Beuscher L, Grando VT. Using spirituality to cope with early-stage alzheimer’s disease. West J Nurs Res; 2009. 31(5):583–98. DOI: 10.1177/0193945909332776
Kirkland K, Mcilveen H. Full circle: spiritual therapy for people with dementia. Am J Alzheimer’s Dis; 1999. 14(4):245–7
Blom MM, Zarit SH, Bosmans JE, Cuijpers P, Pot AM. Effectiveness of an internet intervention for family caregivers of people with dementia: results of a randomized controlled trial. PLoS One; 2015. 10(2):e0116622. DOI: 10.1371/journal.pone.0116622
Tremont G, Davis J, Papandonatos GD, Grover C, Ott BR, Fortinsky RH, et al. A telephone intervention for dementia caregivers: background, design, and baseline characteristics. Contemp Clin Trials; 2013. 36(2):338–47. DOI: 10.1016/j.cct.2013.07.011
Winter L, Gitlin LN. Evaluation of a telephone-based support group intervention for female caregivers of community-dwelling individuals with dementia. Am J Alzheimer’s Dis Other Dement iasr; 2007. 21(6):391–7. DOI: 10.1177/1533317506291371
Jones F, Bright J. Stress: myth, research and theory. Pearson; 2001. Available from: https://www.pearson.com/us/highereducation/program/Jones-Stress-Myth-Research-andTheory/PGM30127.html
GarcÃa-Alberca JM, Cruz B, Lara JP, Garrido V, Gris E, Lara A, et al. Disengagement coping partially mediates the relationship between caregiver burden and anxiety and depression in caregivers of people with alzheimer’s disease. result s from the málaga-ad study. J Affect Disord; 2012. 136(3):848–56. DOI: 10.1016/j.jad.2011.09.026
Raggi A, Tasca D, Panerai S, Neri W, Ferri R. The burden of distress and related coping processes in family caregivers of patients wit h alzheimer’s disease living in the community. J Neurol Sci; 2015. 358(1-2):77–81. DOI: 10.1016/j.jns.2015.08.024
Beinart N, Weinman J, Wade D, Brady R. Caregiver burden and psychoeducational interventions in alzheimer’s disease: a review. Dement Geriatr Cogn Dis Extra; 2012. 2(1):638–48. DOI: 10.1159/000345777